Despite having precious little sleep last night due to a
constant barrage of infusions, transfusions, and vitals-checking, I feel better
than I have in a week. I ate solid food
without feeling nauseous and I’m sitting away from the bed with the OK to take
a walk outside my room. I’ll have to wear a mask, but I may even get to go –
get this – without my IV pole! My buddy may have to hang back. Between that, a
shower, brushing my teeth and clipping my nails, I feel downright human. Now,
the guy next door…he clearly doesn’t feel human. It would be easy for me to be
annoyed with the noise, to be put off by the disturbance while I’m just trying
to rest or heal, and I dare say, every one of you, in my position, would feel totally
justified in pushing the call button and saying, “What can we do to fix this,
hmm?”
Now, this isn’t a problem of the veteran’s system. In fact,
it tells me that there is a level of compassion that far exceeds what a
commercial system could offer. His plaintive raspy, “Is there anybody out
there? Please?” is grating, but the kind of hell he is going through far
exceeds my discomfort. I don’t buy off into Dante’s version nor does the
traditional evangelical model of hell make any sense at all, but without doubt, we’re
capable of putting ourselves into hell on earth even when we’re not suffering.
Let me say right now, this is not theological in nature, but I do use the word,
‘hell’ because it’s a place of torment, even if only in our minds.
I understand that these people sometimes make it to the acute
medical ward when they should realistically go to a psych ward elsewhere
because they clearly have issues that are not simply physiological. Then again,
sometimes the wires in our heads are mis-routed by something physiological or
chemical and we just don’t act like
we should even though on the inside it feels
like all cylinders are firing properly. If there’s anything I’ve learned over
the past 16 days, we are a well-oiled, finely tuned machine that requires an
amazing balancing act to keep functioning at tip-top level. We’re pretty resilient and can put up with
abuse, but at some point without the right maintenance, something breaks. As I’ve
pointed out, any cancer is simply a breakdown of the immune system at some
point. Mental health has a number of facets, but it is still, at its core, something
that can usually be well-managed with some medication and sometimes some
guidance to keep the adjustment in balance.
Better life through chemistry! Shoot, even leukemia comes down to that
where chemistry (albeit rather toxic chemistry) saves the day.
Suffice it to say, after spending a couple of nights in the
la-la land of incoherence, metaphysics isn’t far behind – you can discuss it,
break it down into bite-sized components for dissection, and even understand it
to some extent, but at its essence, it’s all something that distills down to one
person’s opinion and understanding, regardless of how many common touch points
there are. The good thing about these forays to incoherence is that, despite how
truly awkward they are, there are moments of insight and lucidity that you
bring back with you because your mind just doesn’t live in those places, by
design. It’s in ‘safe mode’ and you find that from that safe place of blankets,
ice cream, and tucking in, other things that we think are so important just
aren’t. Be assured, I’m not going to start a religion based on my metaphysical
musings, despite how really special I’m sure they would be.
OK, I’m not going to spring anything profound on you and
remember, I’m talking about my own version of post cards from the edge. My thesis, if you will, is that the hell
we think we are living is likely nothing like the hell that others are unable
to extricate themselves. They can both be as real, terrifying, and gripping,
but as I’ve seen, the greatest ticket to my own Purgatory of sorts, is
partially bought by attitude, a bit of compassion from someone else, and most
of all, the willingness to forego the conclusion that “it is what it is.” The
fatalistic, noncommittal shrugging of one’s shoulders will keep you in a land
of confusion, mediocrity, or your own private hell.
Don’t fight a losing battle, but neither give up because you
haven’t found a solution yet, even if your mental faculties are running on safe
mode at 2:00 am and the guy next door is still asking, “Is anyone out there?
Please?” There are a lot of things I’m dealing with that are downright hellish,
but I’m not participating in some hell of my own construct. And I hope you aren’t
either. Don’t wait to extricate yourself from a truly disagreeable situation.
Find the solution…or better yet, be
the solution for the person who is asking if anyone’s out there.
I hope my two cents for the day didn’t come across as
preachy. It’s not my style, really, but after three weeks of different voices
from patients with dementia, you wonder, hence my derailed train of thought.
Have a wonderful evening – be well, stay strong, much love
to you all!
See now I am a big believer in the motto "It is what it is". I have a plaque with that said motto as the first thing I see when I open the door to my apartment, and it helps me to keep this in mind several times a day. Always before, I was an "If only this were this way" and "If only this would happen,", etc., etc.--but doing the DBT (Dialectical Behavioral Therapy--I swear by it; it's improved my life and way of thinking a lot) thing of "radical acceptance" has helped me so much. The idea is that pain is inevitable, but suffering is a choice--and very often what we do to avoid suffering actually makes it worse, so it's a good and useful tool to learn to just sit with the pain and not run from it, but to learn to accept that "it is what it is" and not dwell in some wish-it-were-different place. So for me, "It is what it is" has helped calm me, helped me learn to deal with life as it really is, not how I wish it was, and to better accept the reality that life really is in the moment, and deal with that reality. Just throwing this out there to say that "It is what it is" is helpful to me and has been a positive, rather than a negative in my life.
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