So, what kinds of things occupy my mental CPU at 2:00 am?
Well, there’s the IV alarm because I rolled over on my fluids tube and I made a
kink in it. “Downstream Occlusion” is at least something I could do something
about because I can adjust the tube myself or roll over, but if it’s upstream
or if there’s something else, I’m out of luck and then that persistent beeping
becomes louder and then I have to push the nurse call…if I can find it. Maybe they’ll just hear it. Maybe it’ll just
go away. No, I have to do something. I
have to find the nurse call. Wait,
which cord is that? It all looks the same right now. Am I really that out of
it? No drugs, mind you, just out of it. So, the beeping persists until I can
muster the veritable willpower to find the nurse call.
Then there’s the baser stuff like getting up to use the
bathroom. At some point, reason sets in and I muster the strength to use the
commode chair just a pace from my bed…and then call the nurse to move the
nastiness away afterward. Why in the world would this be such a difficult
thought process, you might think. I can’t tell you, honestly, except to say
that being in such a weakened state, you just don’t think in auto-pilot like
you’re accustomed. You communicate using big-boy words and tell the doctor how
it hurts and they look at you over compassioned-rimmed glasses and years of
experience, but inside your head, you’re thinking, “I think I need to go to the
bathroom so you don’t put me in a diaper.”
It can be a humiliating, dignity-robbing experience to fill
a commode chair with your own waste, of course, but it can also reaffirm your
faith in the medical profession that it’s not just about numbers, chemicals,
and needles, but about some of the softer things that speed healing like smiles
and caring. To make it work, there has to be as much of both, mixed with a modicum
of tough love to keep you fighting when you just want to roll over and sleep.
I felt I had made a triumph to feel strong enough to take
the extra four paces to the bathroom last night, not to mention not having to
require someone to inspect my bowel movement. Having a shower downright poured
energy I didn’t have into me. On the
lost side, I weighed in at 179.1 pounds, a weight I haven’t seen since it was
the 80s and I was ‘too sexy for my shirt, to sexy for my shirt, too sexy.’ Now,
I’m probably getting too skinny, but that’s another story. I’d really enjoy eating more because I have
to say the food here has really been good, but I just don’t feel like it. I’ve tried to eat as much as I can, but it just
doesn’t taste right. The fruit is as much as I care to eat and everything else
is a crap shoot. The kicker is that the
minty-fresh taste that the toothpaste and mouthwash people developed tastes
rather foul as well. I really wanted to
have that much to fall back on, but alas, I have this lingering sorta sweet taste
from them that isn’t quite minty and not quite fresh! Add to some abdominal
cramps, it’s just not a good recipe for a bit appetite. The docs don’t think there’s anything bad
going on, but they do want to do a CT scan on my gut to make sure nothing has
settled in.
On the found side, I guess I’m finding it far too easy to
sniffle over stoopid stuff on shows I watch on Netflix. I was watching a medical drama (I know…am I
crazy?) before all this went down, called, “A Gifted Man,” and inevitably,
everything works out emotionally except for the guy who doesn’t and everyone is
sad including me and my eyes just open up over this fictitious drama about a
condition that someone looked up in a medical book because it made a good
script. Good grief, I’m a basket case!
So, I’m attaching an unretouched picture (and it won't let me rotate it) from today to prove
that I am, in fact, in lousy shape and that my scruffy look is not something to
be sought after…and I had to leave my attitude t-shirt on as well. I figure if you gotta be in a veterans
hospital where “cussin’ like a sailor” is pretty normal, this is pretty
tame. And no, I’m not much of a potty
mouth although I have let one fly from time to time. I am, after all, all too
human.
So, it has definitely been a day of lost and found and I’m
sure I’ll find some other things I just didn’t expect and lose some other
things that long-needed shedding.
Thanks to the many of you around the world (literally—didn’t
know I had a veritable fan club in the Philippines) who are rooting for me. It
does mean, the literal world to me.
Stay strong, be well. Much love to you all J
Hugs, Todd....another day. Thinking of you. ~ Liz
ReplyDeleteYeah, isn't it unbelievable when minty breath freshener and your favorite foods don't taste good or lose all their interest? I forced a banana once during recovery, and I have not eaten a banana since. I used to love them.
ReplyDeleteMy wife has jabbed me couple times with the comment, "I changed your diaper, you know." I actually ended up with one, and she had to put it on the first time because I couldn't figure out how to do that on myself. I wore Depends for months (#redface) due to a bladder infection from the "BK" virus we all have, but which multiplied after the transplant when my immune system went down (purposely).
We're still paying attention here, too! Again, I feel your pain. Unfortunately, I'm exceptionally empathetic, so I really do have flashbacks. You'd think "empathy" would be a good thing, but how is it helping you? It just lets me relive some feelings that aren't so good ... but some real good memories of my wife and I sharing that time.
I think we're going to get a daughter or two out there to share times with you.
Joy to you despite your situation!
Continued thoughts and prayer for you Todd. And if you come up to Seattle Maybe we will have a little Bengal Reunion here in WA!!
ReplyDeleteWe love you, Todd Park.
ReplyDeleteWe will always pray for you.
- your fans in the Philippines. :)