I still don’t think this has sunk in. I haven’t mentally processed the fact that I
even have leukemia, let alone that it is a deadly disease that threatens to kill
me, left unchecked. From the time the doctor faced me and told me the stellar news,
I’ve been in practical mode, getting things done: packing for a month-long stay
(maybe more) at the hospital, doing laundry, setting bills to pay, and talking
to family about what I’m facing in the days and weeks ahead. Thankfully, I was
able to come home over the weekend and get some of the details taken care of,
but when your life has just been ground to a screeching halt like this, it
feels like everything is in a state of chaos.
Physically, I have felt tip-top with the exception of a
headache courtesy of my spinal tap on Friday.
I still have doctors coming in today, surprised that I’m feeling as well
as I am considering that 50% of my bone marrow is apparently teeming with
cancerous cells. Apparently 20% is the benchmark, so you can see this isn't inconsequential. That’s a comforting thought, huh?
Mentally, I think I’ve
accepted what’s in front of me and have mapped out what I can expect in
broad-brush terms. That helped me to discuss with my employer how best to move
forward. Everyone there was incredibly supportive, far more than I could have
expected, especially in that I’ve only been a part of this organization for
just over three months. And the real kicker is that the blood test that started
this whole adventure was a part of the company’s insurance incentive. I’m not
the first person to have had his life literally saved as a result of this
simple screening.
I’ve spoken to a number of people in preparation for the
next month and on the one hand, I’m faced with the stark realities of
chemotherapy and its side effects; on the other, I’m feeling better about being
able to weather it. I’ve also run across people who would urge me to seek
alternative forms of treatment or fly to another city for another treatment
option. As far as I can tell, I’m in the best of care and am being handled
carefully, deliberately, and aggressively to ensure my odds for survival are
the best.
Thanks to my friends Betsy Peterson and her partner Tracey
Rush who is on the downside of Hodgkin’s lymphoma (the crowd roars), and their
friend, Linda Huntimer who is also a cancer survivor and was able to get me a
lot of practical information quickly. Big thanks to Paul Pavao, friend of mine
from many years ago and father in-law of my own daughter, who is a fellow
AML-survivor. That my daughter’s father
and father in-law are both dealing with acute leukemia kinda had her more than
just a little concerned. What are the
odds?
So, I’m sitting in a private hospital room – a room with a
view, nonetheless. In less than 24 hours, I’ll have toxic chemicals dumped into
a special IV line called a “pick line” which will attack the nastiness inside
my bone marrow that threatens to take me out. We have some tests yet to run
including another bone marrow draw, which I am eagerly awaiting, like having
teeth pulled without Novocain. But that will give us what we need to know. Maybe then, it'll fully sink in and I can emotionally process this. I know at some point it will hit me and I'll have the same shock as those I've broken the news to and come to terms with it all. For now, onward toward beating this thing!
Let the games begin!
Game on!
ReplyDeleteI strongly believe that you will WIN this game. :)
I will be thinking of you cuz and hoping for your safe return to good health. Love G
ReplyDeleteTodd, based on an acute leukemia rate of 12,000 per year in a country of 30 million people, I calculated the odds of someone's father and father-in-law getting it in a space of three years as 1 in 64 million. I now realize that there is less than two years between our diagnoses, so we can up that to about 1 in 150 million.
ReplyDeleteTodd my prayers are with you. Your USNA friend
ReplyDelete